Meet the person behind this project

Hi 👋 I'm Renato Molina Toth — a software engineer and nutritionist based in Canada.

PKD runs in my family. I've been involved with the PKD community for years, following the research, connecting with other patients and caregivers, and trying to make sense of a rapidly evolving landscape of treatments and clinical trials.

I built PKD Cure Tracker because I saw a gap: the information is out there — in journal papers, on ClinicalTrials.gov, in conference abstracts, in Facebook groups — but it's fragmented and hard to keep up with. As someone with both a technical background and training in nutrition, I wanted to create a single place where our community can find clear, impartial, and up-to-date information without wading through noise.